How-to Guide: Governance in Biobanking
| Main Authors: | Goisauf, Melanie, Durnová, Anna, Grewal, Jasjote, Mayrhofer, Michaela |
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| Format: | info publication-workingpaper Journal |
| Terbitan: |
, 2019
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| Subjects: | |
| Online Access: |
https://zenodo.org/record/3516948 |
Daftar Isi:
- This how-to guide focuses on addressing general issues relating to governance that are commonly seen as challenge areas, notwithstanding varying regulatory requirements. Indeed, we suggest how biobanks can adequately prepare themselves with regards to develop their own governance structure and networks, including how to facilitate trust that ultimately assist daily operations and sustaining longevity of biobanks.
- his How-to-Guide to Governance in Biobanking is based on findings from the "Data in Question" survey, which has been supported by the H2020 project ADOPT BBMRI-ERIC (GA 676550), the COST Action IS1303 CHIP ME, the FP7 project RD-connect (GA 305444), the IMI project DO-IT (GA 116055) and Biobank Norway (GA 245464), and a qualitative follow-up study (ongoing) is supported by BBMRI-ERIC.