RehabMove 2018: AEROBIC EXERCISE AND COACHING TO IMPROVE PHYSICAL FITNESS IN NEUROMUSCULAR DISEASES: I'M FINE STUDY PROTOCOL
| Main Authors: | Oorschot, S., Voorn, E.L., Brehm, M.A., Nollet, F. |
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| Format: | Proceeding |
| Bahasa: | eng |
| Terbitan: |
, 2018
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| Subjects: | |
| Online Access: |
https://zenodo.org/record/1481935 |
Daftar Isi:
- BACKGROUND: In individuals with neuromuscular diseases (NMD), symptoms of muscle weakness, fatigue and pain may lead to reduced physical activity and a sedentary lifestyle, which negatively impact on physical functioning. The lack of individualization of previously studied physical activity programs likely contributes to the inconclusive overall evidence regarding exercise in NMD. Consequently, the optimal training approach and strategies to preserve a long term active lifestyle remain unclear. Therefore, the personally-tailored physical activity program I’M FINE was developed for individuals with slowly progressive NMD, combining aerobic training to improve physical fitness and coaching to preserve an active lifestyle. PURPOSE: To evaluate the efficacy of the I’M FINE program on the physical fitness of individuals with slowly progressive NMD, and to evaluate the efficacy of this program on preserving an active lifestyle. METHODS/DESIGN: A multicenter, assessor-blinded, randomized controlled trial will be conducted. Patients with post-polio syndrome (N=30), Charcot-Marie-Tooth disease (N=30), or other slowly progressive NMD (N=30) with a request for help indicative of impaired physical fitness due to physical inactivity will be randomized to the intervention or control group, receiving usual care. The intervention consists of a home-based 6-month polarized aerobic exercise program. Target intensity will be based on the patient’s anaerobic threshold. The coaching program involves 8-12 individual sessions to identify and focus on individual beliefs aiming to promote a physically active lifestyle. At baseline, post-intervention, and at 6- and 12-months follow-up, peak oxygen uptake, daily activity, and other secondary outcomes (e.g. quality of life, metabolic syndrome markers) will be assessed. DISCUSSION: The results will give insight in the efficacy of the I’M FINE program on physical fitness and an active lifestyle of individuals with slowly progressive NMD.